Advocacy. Education. Awareness.


Governor Jack Markell: Employing People with Disabilities

Monday, February 25, 2013 @ 8:45 PM
View this video of Governor Jack Markell discuss A Better Bottom Line: Employing People with Disabilities.

Premiere of DSA of Delaware Newsletter

Tuesday, February 05, 2013 @ 7:50 PM
Take a look at the February issue of the new DSA of Delaware newsletter. See the latest news and events from 2013! In this issue are featured stories on the 10th Annual Buddy Walk, Spotlight story on DSA member Jordan Taylor, the Sexuality Conference with author Terri Couwenhoven, and a summary of new events occurring in Southern Delaware. Other stories and events are featured as well. Enjoy, and share with others!

Ninth Annual Trisomy 21 Symposium

Sunday, January 20, 2013 @ 11:12 AM
The Ninth Annual Trisomy 21 Symposium is sponsored by the Trisomy 21 Program at The Children's Hospital of Philadelphia. It will take place Saturday, March 16th 2013.

CHOP Growing Up Study

Friday, January 11, 2013 @ 9:59 AM
CHOP is inviting the Down Syndrome Association of Delaware to participate in a research study to create new growth charts for children with Down syndrome.

Youth Leadership Conference January 25

Thursday, January 10, 2013 @ 7:20 PM
Do not miss the Youth Leadership Conference on January 25th! This will be the first meeting of the newly-formed Delaware Youth Leadership Initiative (DEYLI), of which Staci Forrest is the founder and director.

Understanding the Child Mental Health System

Friday, January 04, 2013 @ 8:16 PM
The next MCO call is Tuesday, January 8th. This is an opportunity for families to call and ask questions related to children’s mental health and behavioral needs. Please join MCO and representatives from the Division of Prevention and Behavioral Health Services, Disability Law, Medicaid, Delaware Physicians Care Inc., United Healthcare and other agencies. This call will be January 8th 2013 from 11:00am to 1:00pm. Then they will be every other month, the second Tuesday, also from 11:00am to 1:00pm.

2013 O'Neill Tabani Enrichment Fund Applications Available

Thursday, January 03, 2013 @ 11:28 AM
The O'Neill Tabani Enrichment Fund offers financial assistance to adults - 18 and older - who have Down syndrome and wish to continue to enhance their lives by taking classes or enrolling in postsecondary educational programs.

Swimming Helps Children Develop Mental Skills

Friday, December 28, 2012 @ 5:13 PM
The November article from ParentHerald describes how learning to swim early helps children develop mental skills.

Save the Dates: Junior Partners in Policymaking

Thursday, December 27, 2012 @ 11:25 AM
Take a look at the upcoming events held by the Delaware Department of Education, including the LIFE Conference, Inclusion Conference, Junior Partners in Policymaking, and Delaware Transition Conference. Also included are the Junior Partners in Policymaking 2013 Brochure and Application.

Delaware Family Voices December Newsletter

Thursday, December 20, 2012 @ 10:31 AM
Check out The Voice, the December newsletter from Delaware Family voices. This issue features holiday gift ideas for differently-abled kids, Medicaid and Managed Care questions, and more!

Holiday Fundraiser for Waggies by Maggie and Friends

Wednesday, November 07, 2012 @ 5:42 PM
The DSA of Delaware is having a fundraiser for Waggies by Maggie and Friends, an organization that sells gourmet dog treats made by individuals with intellectual disabilities.

Career and Life Studies Program Open House

Thursday, November 01, 2012 @ 11:19 AM
The University of Delaware is having an open house for the Career and Life Studies Certificate Program (CLSC) on November 8th.

Family Support, Culture and Disability Workshop

Wednesday, October 24, 2012 @ 2:48 PM
Family SHADE is holding a Family Support, Culture and Disability Workshop November 7th and 8th, 8am-4pm at Appoquinimink Training Center.

Delaware Health and Social Services Forum

Wednesday, October 24, 2012 @ 2:47 PM
Join Jane Gallivan and other staff from the Division of Developmental Disabilities Services.

Connecticut Down Syndrome Convention

Wednesday, October 24, 2012 @ 2:39 PM
The Connecticut Down Syndrome Congress is having their 27th Annual Convention November 17th, 2012 in Water's Edge, Westbrook Connecticut.

2013 LIFE Conference

Wednesday, October 24, 2012 @ 2:36 PM
Registration is now open for the 2013 LIFE Conference.

"Down Syndrome May Hold Key to New Alzheimer's Treatments"

Friday, September 28, 2012 @ 11:26 AM
Read this article published by Reuters which states that a new three-year study on individuals with Down syndrome may help identify the changes associated with dementia.

Integrating Therapy into State Standards

Friday, August 31, 2012 @ 8:37 AM
An article about integrating therapy into the Common Core State Standards.

Lauren Camp in the Wilmington News Journal

Thursday, May 31, 2012 @ 9:24 AM
Check out this week's Wilmington News Journal to find an article about Lauren Camp and her new summer camp!

Meet with Senator Carper

Thursday, May 31, 2012 @ 9:19 AM
We have an important local legislative meeting on June 1st with Senator Carper to request his co-sponsorship of the ABLE Act.

Apply for the O'Neill Tabani Enrichment Fund

Wednesday, May 09, 2012 @ 1:16 PM
The mission of the to O'Neill Tabani Enrichment Fund is to offer financial assistance to young adults with Down syndrome who are continuing to enrich their lives by taking classes or enrolling in postsecondary educational programs.

Submit Your Photo for the 2012 Times Square Video

Monday, May 07, 2012 @ 10:58 AM
The National Down Syndrome Society is kicking off Down Syndrome Awareness Month and the New York City Buddy Walk with a video presentation in the heart of Times Square. This video could feature you! Submit your photo today.

National Down Syndrome Society and D.A.D.S. National ABLE Webinar

Monday, May 07, 2012 @ 10:43 AM
NDSS May Webinar: NDSS and D.A.D.S. National Present "How You Can Help Us Pass The ABLE Act Today," on May 22nd at 7PM.

"Days of Summer" Camp

Tuesday, May 01, 2012 @ 9:24 AM
Sign your kids up for a fun summer camp experience! The day camp program is for kids ages 4-12 with Down syndrome and their siblings. It takes place August 1st-August 3rd in Middletown, Delaware.

A Big Moment at a Youth Track Meet

Tuesday, May 01, 2012 @ 9:14 AM
Read the following article from Oregon about a runner with Down syndrome creating a big moment in a youth track meet!

Summer Camp Scholarships Available!

Tuesday, April 03, 2012 @ 12:03 PM
Apply for a $300 Summer Camp Scholarship by May 1st!

End the R-Word

Tuesday, March 06, 2012 @ 11:39 AM
A video presented by the Treasure Valley Down Syndrome Association in support of the Spread the Word to End the Word campaign.

Down Syndrome Organizations Respond to Decrease in Funding

Monday, March 05, 2012 @ 2:32 PM
The National Down Syndrome Congress, Global Down Syndrome Foundation, and National Down Syndrome Society respond to the decrease in federal funding for people with Down syndrome in this newsletter.

The ABLE Act is Back!

Monday, November 14, 2011 @ 6:08 PM
ACTION REQUIRED: We need your help! We need you to call your two Senators and Representative (click here and input your zip code for your Members: http://capwiz.com/ndss/home/) and ask them to be an original cosponsor of the ABLE Act of 2011. We’ve included a call script and all the information you need to make your phone calls. **Note: Double check to see if your two Senators and Representative signed onto the bill in the last Congress (see below)

Senators Sherrod Brown, Susan Collins Introduce Bipartisan Bills to Enhance Down Syndrome Research

Monday, November 14, 2011 @ 12:31 PM
SENS. SHERROD BROWN, SUSAN COLLINS INTRODUCE BIPARTISAN BILLS TO ENHANCE DOWN SYNDROME RESEARCH Email Your Members of Congress and Ask them to Cosponsor the 21 Act Bills – it only takes two minutes

PWP Success Story Wins Essay Contest & $1,000 from Merck & Co.

Monday, October 31, 2011 @ 4:06 PM
They say a picture is worth a thousand words. But it took Jack Smith only 400 words to win $1,000 and broader recognition for Practice Without Pressure. Jack works for Merck & Co. outside Philadelphia. As part of its Partnership for Giving program, Merck runs an annual essay contest, "Touched by an Agency" that gives employees an opportunity to recognize non-profits that have made a difference in their lives. Jack's essay was one of 18 singled out this year for corporate support.

The Down Syndrome Research and Treatment Foundation Announces Grant Awards to Advance Cognition Research and Potential New Therapies in Down syndrome

Monday, October 31, 2011 @ 4:03 PM
Research to Accelerate Treatments to Improve Cognition for Individuals with Down syndrome Palo Alto, CA, October, 12, 2011 - The Down Syndrome Research and Treatment Foundation (DSRTF), announced today that it will fund leading researchers from major research centers around the country to help accelerate the delivery of treatments to improve cognition, including learning, memory and speech for individuals with Down syndrome.

Delaware is making strides in care of its older residents

Sunday, October 02, 2011 @ 4:18 PM
This article was written by Rita Landgraf, secretary of Delaware's Department of Health and Social Services and a former president of AARP Delaware. Rita Landgraf is presenting at the DSA of DE Adult Support Group Meeting on October 12th, from 12:00 to 1:00 PM at the Special Olympics office. Visit the Events page for details on this DSA of DE event.

Study: Having a Son or Daughter With Down Syndrome: Perspectives From Mothers and Fathers

Sunday, October 02, 2011 @ 2:23 PM
This study asks parents who have children with Down syndrome how they feel about their lives so that such information could be shared with expectant couples during prenatal counseling sessions. This study was conducted Brian G. Skotko, Susan P. Levine and Richard Goldstein at the Childrens Hospital of Boston.

Down syndrome's rewards touted as new test looms

Sunday, October 02, 2011 @ 2:13 PM
Families report happy lives in first survey of impact of genetic condition Among 2,044 parents or guardians surveyed, 79 percent reported their outlook on life was more positive because of their child with Down syndrome. This is particularly relevant as a new blood test to determine Down syndrome early in pregnancyis expected to be available within months.

University of Arizona Down Syndrome Research Group

Tuesday, August 09, 2011 @ 5:04 PM
Researchers in the Department of Psychology at the University of Arizona have teamed together to establish a world-renowned research group devoted to understanding the cognitive difficulties that individuals with Down syndrome face and the development of new therapies to ameliorate those difficulties. The Down Syndrome Research Group (DSRG) is led by Regents Professor Lynn Nadel and Jamie Edgin and have been recipients of DSRTF Innovation Research Grants since 2008.

Adventure trips with United Special Sportsman Alliance (USSA)

Tuesday, August 09, 2011 @ 4:57 PM
If you love the great outdoors and want to teach your children and teens about the same things you love; you need to go on an adventure trip with United Special Sportsman Alliance (USSA). This incredible organization has been taking kids with disabilities, critically ill children and wounded veterans on special trips all over the country for 10 years. With the exception of travel expenses, most trips are offered completely free of charge for the child/teen and their family. All food, drinks and lodging is covered by USSA.

Bill Signing Ceremony for HB #91 and HB #214

Tuesday, August 09, 2011 @ 4:21 PM
Wed., August 17, 2011 at 10:00am - noon at the Can Do Playground (Location: 4361 Weldin Road, Wilmington, DE 19803) Families, friends, children and individuals with disabilities are invited to take part and celebrate this day of significance as Governor Jack Markell formally signs HB 91 and HB 214 into law.

Peer Workshop - Climb to Employment

Monday, April 18, 2011 @ 10:44 PM
"What about Work? a presentation on Work-ing & social security disability programs."

Albert Pujols is an outstanding baseball player...and so much more

Monday, April 18, 2011 @ 8:32 PM
His big bat has made the St. Louis Cardinals' slugger one of the top 10 players in baseball history. But to people with Down syndrome and the poor of his native Dominican Republic that he helps, he means a lot more than home runs and RBI. B

Apraxia Resource

Saturday, April 02, 2011 @ 12:11 PM
The Down syndrome population is one of the most under diagnosed populations for childhood apraxia of speech. Studies have confirmed that at least 15% of children with Down syndrome have apraxia. It is so very important that children with Down syndrome get the appropriate help they need to treat this motor speech disorder. A parent and professional workshop, The Speech-EZ® Apraxia Program: From Diagnosis to Treatment to Literacy Development, will be held April 9th, 2011 at The Villanova University.

Inclusion at work in school setting

Saturday, April 02, 2011 @ 11:44 AM
Inclusion in general education classes can be beneficial both to children with Down syndrome and their typical peers. One story of inclusion at work is in a third grade classroom in California.

New See and Learn Speech program available soon

Saturday, April 02, 2011 @ 11:33 AM
The first two steps in the See and Learn Speech program, will be available in UK and US English editions in June 2011. The See and Learn Speech program is designed to help children with Down syndrome improve speech discrimination skills and develop clearer speech production.

The Division of Developmental Disabilities Services (DDDS)

Monday, March 07, 2011 @ 4:10 PM
The DSA of Delaware will not be holding an Adult Support Group Meeting in March. We will resume our monthly meetings in April. In lieu of the March meeting, we recommend attending the following DDDS Forum. It is expected to be an informative session!

Adventures in Recreation: Celebrating Inclusion in Delaware

Thursday, February 24, 2011 @ 8:07 AM
At each event, the State Parks personnel will be highlighting inclusive recreational opportunities for people with disabilities in all the State Parks throughout Delaware.

Delaware Lifespan Respite Care Network

Thursday, February 24, 2011 @ 7:57 AM
IN THIS ISSUE Delaware Lifespan Respite 2011 Summit Financial Assistance Lifespan Respite Care Program Reauthorization Input Requested Information and Referral New Staff Member Calendar Resources

Etsy Posts Policy Changes: Prohibiting Items and Listings That Disparage or Promote Hate

Saturday, January 15, 2011 @ 11:44 AM
This week, Etsy's Chief Operating Officer, Adam Freed posted a letter regarding recent policy changes. Etsy policies have prohibited disparaging or promoting hate against people based on race or religion for quite a long time. But they never covered gender, people with disabilities, or sexual orientation. They are changing that — and a few other policies — effective now.

Online Resource! Down Syndrome: Health Issues - Medical Essays and Information

Thursday, December 02, 2010 @ 3:27 PM
Len Leshin, M.D., F.A.A.P. is a pediatrician and the father of Avi, 16 years old, and Nathan, 18 years old. Avi has Down Syndrome and has inspired him to write a number of essays about children with DS for other parents. Dr. Leshin has compiled these essays and other information for parents and professionals on a single website for easy access. Check out the news and information posted on this website www.ds-health.com.

Classroom Language and Reading Trial Shows Promising Results

Wednesday, October 20, 2010 @ 9:29 AM
News from Down Syndrome Education International Speaking at an international scientific conference in Rome, researchers from Down Syndrome Education International and the University of York today reported positive initial results from a landmark study of a targeted language and reading programme designed for children with Down syndrome.

The Facts of Life and More: Sexuality and Intimacy Across the Lifespan

Tuesday, October 19, 2010 @ 10:26 AM
Join us for the the October NDSS webinar on October 20th at 12pm ET. Expert Leslie Walker-Hirsch will explore The Facts of Life and More: Sexuality and Intimacy Across the Lifespan for People with Down Syndrome.

Down syndrome football player scores TD in Washington game

Tuesday, October 05, 2010 @ 6:56 PM
Ike Ditzenberger is like a lot of other 17-year-old American football players. He dreams of playing college football. He attends daily practices. Most of the time he toils away in offensive drills. Then, on rare occasions, Ditzenberger runs into the limelight with aplomb. The description could fit thousands of American teenagers, except for one crucial detail: Ike Ditzenberger has Down Syndrome.

D.A.D.S. Work to Get 'Dads' Involved

Tuesday, October 05, 2010 @ 6:03 PM
NDSS Monthly Webinar Features Fathers Members of D.A.D.S. and DSAIA will be presenting on the National Down Syndrome Society's Monthly Affiliate Webinar on Policy Education for Fathers, scheduled for Tuesday, November 23rd at 12:00 pm Eastern.

The Center for the Creative Arts: SPECIAL NEEDS PROGRAMS

Tuesday, October 05, 2010 @ 5:42 PM
Special Art for Special Kids 9 Tuesdays, 10/19/2010-12/14/2010 6:00PM-6:55PM Member: $107 Non-member: $127 Materials: Included

Doctors, Genetic Counselors, Medical Geneticists and Down Syndrome Advocates Agree on Prenatal Diagnosis Information to be Published

Tuesday, October 05, 2010 @ 5:00 PM
Balanced and accurate informational booklet will soon be available to medical professionals and families throughout the United States.

HB 328 ensures children with disabilites are entitled to a World Class education

Tuesday, September 21, 2010 @ 8:27 AM
On June 17, Governor Markell signed legislation that uninamously passed both House and Senate chambers expanding the definition of FAPE.

My Great Story

Tuesday, June 22, 2010 @ 4:39 PM
National Down Syndrome Society's My Great Story section features Dennis Diehl's brother-in-law, David.

Down syndrome patients could unlock mysteries of aging

Wednesday, March 24, 2010 @ 1:01 PM
By Liz Szabo, USA TODAY In 1950, when Marybeth Solinski was born, a diagnosis of Down syndrome was practically a death sentence. Children with the condition often died before their 10th birthday. Yet Solinski, at 59, has outlived her parents. She has even joined AARP. Her longevity illustrates the dramatic progress for people with Down syndrome. Thanks to better medical care, the average life expectancy for a child with Down syndrome is now 60 years, according to the National Down Syndrome Society, which estimates that about 400,000 people are living with the condition in the USA.

Athletes drop in on Vice President Biden Annual 'Hill Day' sends message to legislators

Thursday, January 28, 2010 @ 1:34 PM
Caitlin Coughlan and Michael Pasquale represented SODE and Best Buddies Delaware, respectively, at this year’s Capitol Hill Day, and for them, the venture to the nation’s Capitol included an unexpected stop.

5 Minutes With Patricia Moody - The Happy Advocate

Thursday, January 07, 2010 @ 9:27 AM
The way Patricia Moody approaches life is proof that her title of "The Happy Advocate" is absolutely accurate. Patricia very happily dedicates her time and energies as an advocate for others with Down's Syndrome.

Intellectually Disabled Student Wins Dorm Suit

Thursday, January 07, 2010 @ 9:19 AM
Here's one reason Micah Fialka-Feldman wants to live on his college campus, instead of remaining at home with his parents: To get to college in the morning, he takes the public bus near his home, then transfers to a second bus. The trip takes about two hours. There is more to this story and Micah's desire to live on campus.

Trisomy 21 Translational Research Parity Act of 2009 Introduced in Congress

Thursday, December 10, 2009 @ 5:35 PM
Trisomy 21 Translational Research Parity Act Introduced in Congress– Importance for Down Syndrome Biomedical Research and New Opportunities On September 25, 2009, the Trisomy 21 Translational Research Parity Act of 2009, or the “21 Act” (H.R. 3656) was introduced in the US House of Representatives by Representatives Cathy McMorris Rodgers (R-WA), Patrick Kennedy (D-RI), and Pete Sessions (R-TX). A companion bill (S. 1762) was introduced on October 7, 2009 in the US Senate by Senators Sam Brownback (R-KS) and Sherrod Brown (D-OH). Read more about this act and how you can help.

BE INSPIRED by this video of Spartan Sparklers Cheerleading

Monday, November 30, 2009 @ 7:11 PM
Spartan Sparkles Cheerleaders Inspire Young Girls - Video - Oprah.com

Rosa's Law

Saturday, November 21, 2009 @ 1:50 PM
Senator Barbara A. Mikulski (D-Md.) has introduced "Rosa's Law," a bill that will eliminate the terms "mental retardation" and "mentally retarded" from the federal law books. Senator Michael Enzi (R-Wyo.), U.S.Ranking Member of the Health, Education, Labor and Pensions Committee, is the Republican sponsor of the bill. Rosa is a young girl with Down syndrome living in Maryland.

New guidelines for physicians: How to give a diagnosis of Down syndrome

Saturday, October 03, 2009 @ 3:00 PM
New guidelines for physicians: How to give a diagnosis of Down syndrome by Children's Hospital Boston staff on September 30, 2009 by Brian Skotko, MD, MPP

Understanding the implications of prenatal testing for Down syndrome

Friday, September 25, 2009 @ 8:58 PM
New article examines the influence of current tests on birth rates, assesses forthcoming tests, and calls for the establishment of medical and educational policies

Essay: Mothers share experiences, feelings about children with DS

Tuesday, August 26, 2008 @ 1:48 AM
Essay: Mothers share experiences, feelings about children with Down syndrome By BEVERLY BECKHAM The Boston Globe

Informational Websites

Wednesday, October 18, 2006 @ 12:02 PM